High cortisol levels in blood - being referred for Cushing's syndrome/disease testing
I went to my GP with a small hump on my neck and they ran some morning cortisol testing and it came back elvated at 717 so I have been referred to endocrinology for Cushing's testing.
I am scared out of my wits. My GP thinks maybe my steroid creams for psoriasis maybe have caused it but I haven't used them since March/April this year. That is also when I noticed the hump and thought it was bad posture for a while. I have gained a stone in weight over the last year but managed to lose half of it since. I was 12 stone 2lbs in December and now I am 11 stone 6lbs.
Have any of you ever been tested for Cushing's? I am terrified to have it in any sense but I could just about cope with having it caused by steroids or a benign hormone secreting tumour. My fear is I will be one of the very few unlucky ones who have it caused by a cancerous tumour. My health anxiety is so bad these days. I was diagnosed with psoriatic arthritis in Nov and lost my dad suddenly to a cardiac arrest a week later and then my uncle to a cardiac arrest not long after that too. Death and illness have been too close to home lately.
Just need a hug really 😔
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C-PTSD (Complex Trauma), OCD, Panic Disorder, GAD
"Save your sympathy for someone else. I don't need it or want it. What you call a panic attack is merely a few normal chemicals that are temporarily out of place in my brain. It is of no significance whatsoever to me!"
"Recovery always lies ahead - however painful the moment"
"Recovery lies in the places and experiences you avoid"
Dr Claire Weekes.
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